Hatcher Had an MRI December 22nd at Primary Children's. There was a little confusion ... and he ended up with a breathing tube for the procedure. Just as Stanford thought, there is definitely a connection with his plastic bronchitis and anesthesia. I'm trying to just roll with it, but both Randy and I were not too happy about the whole thing. On a good note Hatcher's lungs and heart looked pretty good. Of course he never looks picture perfect, but we were excited to see that the lungs were OK after all of this TPA. Hatcher threw up the entire day, poor guy, and really just didn't feel good. The next day the coughing and sure enough the casts! Back on TPA and I was definitely disappointed to be taking a step back again. He has had some good periods of time on and off since then. Over the weekend that dreaded cough started up and once again Hatcher was struggling to get those nasty things out. Monday he coughed up 10 casts....ahhh! It is hard watching him struggle to get those out. The good thing is that we were able to stay out of the hospital and work through it at home with his pediatrician checking in on us....we sure are grateful for him! He had a great day yesterday and we are hoping he cleared what was in there. So although I'm disappointed about TPA again, I'm thankful that it works and helps him clear those casts!
Waiting for his MRI
It was casts for Christmas! They still gross me out!
I guess its just a reminder just how lucky we are to still have this little guy around. Even though he hasn't been feeling 100% I'm still determined to have him live life to the fullest. We checked skiing off his bucket list, he had fun going "faster" with Randy! And Jaxyn did a good job too, we only stayed 2 hours, it was beautiful and warm and a great memory! I'm glad to post some of the fun we have had ..... we just take the reality of Hatcher and make life as fun as we can! Thank you all for your continued prayers and encouragement!
Thanks for the update! He sure it a tough kid; how fun you got to go skiing; that's great! Hang in there!
ReplyDeleteWhat a fun time skiing! It's so cute to see little kids out there. What a little ninja Hatcher is! I can't believe all that goo comes out of his lungs! I'm glad he so tough, not mention YOU and your husband! wow.
ReplyDeleteIt's so nice to hear about the updates, I am glad that Hatcher is still getting through all of this. You guys have such a fun family!
ReplyDeleteHi! We don't know each other, but I googled on plastic bronchitis and came through your blog... Our son, almost 6, tricuspid atresia with good working fonta, is caughing up the casts smaller, but like the pic on your blog. He's checked up by the docters, they don't find anything yet. I keep on telling them about the casts, but never brought one in. Can you tell me more about the symptoms of plastic bronchitis? Thanks!?
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