Thursday, October 6, 2011



It's been a while since I have updated everyone on Hatcher. First of all thank you to all who continue to keep him in your prayers and think of us! We feel so blessed to have so many that care. I can hardly believe how many people are reading our blog, wow and thanks for caring! He has made so much progress it's exciting. I really didn't think he would ever get to this point. I hope I never forget that this has been really hard .... I have learned to dread those treatments alomost as much as Hatcher! But that I can do hard things and actually find the good in it! Although he has had some struggles with casts, he is learning to work through them and we have not seen a major episode for over a month now! Big things to note ... no more oxygen at night, yippee (he loved getting rid of that), we are down on medications, and biggest he has been off his afternoon breathing treatment for over a week now! We are planning to head back to Stanford this month for a chest MRI and to touch base with all our good doctors! Our hope is that the TPA has not caused any lung damage and that he will be able to come off of his other two treatments. For the first time in a long time I feel good about things. He is growing and although he has days that he just doesn't feel good, the good days definitely out weigh the bad. I have been trying to squeeze in any bit of fun and memory making I can for the kids. I know Hatcher makes me a better mom. I find time to read stories when I should be doing laundry (maybe that's why I have 8 loads to fold today!) and play with play dough and hold him! This week Randy is gone once again and me and the kids have been having a blast. We started a Christmas movie at 9 on a school night and I let the kids stay up and watch it ... you would have thought Jaxyn won the lottery staying up so late on a school night! I am tickeled at how well Hatcher is doing and how smart he is! I could never have imagined watching him go through so many ups and downs that he would be going to preschool and singing his abc's! What a miracle life is for each one of us. So today I am grateful that it is 2 in the afternoon and I haven't even got in the shower yet! That me and the kids made banana bread this morning and that Hatcher said that he hated it, and then smelled it baking and loved it! That my living room is covered in trucks and trailers with no tires because Hatcher is into fixing them by taking them on and off. And most of all that its pouring rain outside and we are cozy in our warm house! I will take everyday I get with both my kids, but the better Hatcher does the more I want! I will continue to update as we head to California and lets cross our fingers that it will be a good outcome!


1 comment:

  1. how exciting! What great updates! Hatcher looks so good! I need to worry less about laundry and more about making memories. I'm working on that one. Good luck with the MRI!

    ReplyDelete