This is all I want ... my two kiddos snuggling up!

Spoiled by yet another Aunt!

Cathy brought us some treats today. Hatcher said, "Oh, is it my birthday?" We decided it would be his un-birthday!

So good to have Pops and Grams here!

This is Kirsten one of our favorites from when Hatcher was a baby. Thanks for making us feel so great, you have wonderful energy and Hatcher is even calling her his girlfriend!

Airplane flying with Aunt Lon ... so happy to see him smile!

Nurse Dorothy brought Hatcher some purple dye for his mohawk. He thought it was pretty cool and so did I! I think he more than deserves to be able to live it up in the CVICU!

Happy times with SIS!

Thanks Grady and LC for the goodie box! Hatcher loved the hat! We hope he will be your star player in years to come! We appreciate all of you who care... it keeps us going!

Once again it's been days since my last update. I will try to do a quick recap of the last few days. Wednesday night Jaxyn, Grams, and Pops arrived. It was crazy good to see miss Jaxyn! She looked so big and her teeth have grown in so much! It had been 1 month since we had seen her... never been away from her close to that long! Hatcher had had a sad day, just not feeling good. I was thinking that he was going to light up when he saw all of them, but he was just feeling too sick. The next morning he had another bronch. It was much better than the last two and stayed stable and they pulled out less plastic. Once he got back to his room he was like a new boy. He has been so happy to have some fresh playmates. It has been so refreshing to see him having happy moments again and even doing some singing and dancing. Lonnie came in on Friday night and boy was I glad to see her. It has been a much needed lift me up! Plans are to head to the OR to bronch tomorrow and also get a CT scan. We still don't know what all of this means for Hatcher but we are trying to remain hopeful. We meet with the head of transplant and discussed some options. Randy and I never could have imagined we would be having discussions like the ones we have had about life the past little while. Jaxyn seems to be handling things OK, her faith is amazing and I am grateful that she is here with us once again. She will start school Monday at the hospital school upstairs and is excited for a new adventure. So sad to see Randy's parents leave today ... can't thank them enough for all they have done for us and for their love and support. My mom is coming in tonight ... we feel so blessed to be lifted and re energized!

I can't even begin to express the experiences we have had with other families who are experiencing such tremendous loss and sadness. We have made friends for life here and will continue to lift each other up. We have felt the loss of 3 beautiful children this week. Although it is sad I am reminded of the grace, love and peace that only comes in those desperate moments. Love to each of the families .... thank you for letting us be part of your journey and we look forward to keeping in touch.